I just felt the need to clarify and explain a little more from the last post. I wrote most of it in the middle of the night and realized later that I didn't explain things well enough.
Several people have asked me if we know what's causing the severe anemia (the really low hemoglobin), and I realized I didn't address that. Part of the current dilemma is that we don't know and it kind of seems like the doctors are just guessing - well it might be this med or that med or maybe because it's Tuesday? It's pretty frustrating and discouraging some days.
So, today we have a phone consult with one of the oncologist's in Mexico. We know they have advised against blood transfusions - and the doctor here is recommending another transfusion. So, we want to get all the information so we can try and figure out the next step. We meet with the oncologist here next Monday the 21st.
Mind you, consulting with the doctors is not always the helpful and enlightening experience one might think. We often come away more confused and frustrated than before. And then there's the experience of meeting with the doctors and nurses here that Valerie is particularly affected by - "they look at me like I'm dying" is a direct quote from her. And you'd be surprised how opinionated people (including medical professionals) can be about your choices of treatment. anyway...
In the meantime, we continue to try and figure out how Valerie can stay somewhat active while also not stressing her body out too much. All while also trying to stay hopeful and positive.
So we are currently taking any and all suggestions for comedies, ways to laugh, and general silliness. :)
7 comments:
i miss you guys. ALOT. tell Val to picture what she witnessed when she came out of her room in the middle of the night when David and I were visiting. She will either laugh or throw up:) I can watch that silly movie Bridesmaids a dozen times and still laugh out loud each time. It's always sunny in philadelphia - have you seen that sitcom? Cracks me up. So inappropriate that you just have to chuckle. i love you girls. Lisa
If you have not watched the series 'Arrested Development' I strongly suggest you netflix it NOW, it is hilarious. And I hope we see you this weekend. :) -Nancy
Lisa - Val LOVED your suggestion.... got a lot of laughter out of her. :) I'm going to remind her of that over and over.
We really liked Bridesmaids too - I'll have to add that to our arsenal. And we just watched the first episode of It's Always Sunny - HIlarious!!!!! LOVE it!!
Nancy - I feel like we may have watched Arrested Development a long time ago, but can't really remember. It is now added to our instant queue! Thanks!
Nancy - forgot to respond to the end of your message - as you can see, our days are up and down but given even the chance of an up day, you'll definitely see us Sunday. Football has been a good distraction for us and you guys make us laugh a LOT... so that's bound to be a great combo! :)
Kid Quotes!!! Please share them with her....they always bring me joy even on the roughest of days. Praying for healing and renewed strength.
Cathi - that's a great idea! If I'm near her when I'm scrolling through facebook, she will often hear me chuckle and ask me "what's so funny?" - at which point, I read her your kid quotes! But I will make it a routine to collect them and read them to her randomly! :)
Post a Comment